Pages

Tuesday, September 29, 2015

Giveaway: Zipit Bedding Set

I always have a reason for posting giveaways, and I'm selective about which ones I post, and on which blog I post them. This sounds like something that might help kids who either don't have the motor skills to make a bed "perfectly" (and goodness knows some of our kids won't do anything if they can't do it perfectly), or who just need a boost in the personal hygiene/life skills department. Check it out and let me know what you think, so I know what kinds of giveaways to keep an eye out for.

Zipit Bedding Set Giveaway
Hosted by Life, Naturally
Get cozy for fall with a new bedding set from Zipit - seen on Shark Tank! Fun designs and a unique zipper connection of sheet and comforter means this bedding stays in place and keeps you cozy all night long! Enter below to win a Rock Princess or Extreme Sports set including fitted sheet, pillow case and comforter. 


Open to US residents only. Ends on October 13. Winner will be emailed and have 48 hours to respond. Good Luck!

a Rafflecopter giveaway
Disclosure: The host of the giveaway, Live Life Naturally is responsible for choosing winners and distributing prizes. There Is No Normal is not responsible for choosing the prizes, winners, or distributing prizes in this giveaway. This blog is merely posting a giveaway in which I think my readers will be interested.

Thursday, January 22, 2015

Make Your Valentine's Day Even More Meaningful by Supporting Southside Soiree



Regardless of your feelings about a "made-up holiday" it's fun to dress up and do something special every now and then. If you can have fun while supporting a great organization, that's even better!

Thus, Southside Soiree.

If you live on the south side of Atlanta, this is the place to be on Saturday, February 14, 2015. Featuring an open bar, live music, dancing, and a three-course meal, the Soiree will satisfy all your classic night-out needs. Knowing your contribution will help others in your community will help complete the enjoyment of the evening.

Monday, October 13, 2014

You Are Your Child's Best Advocate. Trust Your Instincts.

I spent the day yesterday with a few other parents in our special needs support group. We didn't spend every minute talking about our kids, but when we did, it was great to know that the others "got it." Which got me to thinking about how fortunate I am that our homeschooling friends "get us" too.

A couple of years ago, Jack was injured on the zipline at a friend's house. He had been nervous about getting on it in the first place. The other moms, rather than making a big deal about his injuries (after we knew he was okay, but bruised), all made an effort to tell him how brave he was to get on the zipline. It wasn't patronizing, and it refocused his brain to his accomplishment rather than his fear.

Then I remembered back when Jack was smaller - around four or five - and I spent a lot of time reading stuff about ADD, ADHD, and food dyes and preservatives, trying to figure out how to help him. A friend told me that as long as I was looking for something wrong I would find it, and he was fine. Of course, Jack is "fine," but there are also several things going on - even more than I could have imagined all those years ago. And that friend and her negativity are no longer part of our lives.

When asked for parenting advice, my go-to answer is, "God specifically gave you those children. He also gave you the common sense to know how to care for them. Read, ask others, but in the end, trust your instincts. You know your child better than anyone."

A neurological diagnosis doesn't fix everything, nor does it even change anything, really. But if it helps you determine the best ways to help your child cope, or enables you to get help that your child may need, then don't give up. When friends, family, or even doctors tell you that nothing is wrong, use your instincts, and continue to be your child's best advocate.

Wednesday, March 19, 2014

Help Us Help a Local Family #autism

If you have a child with special needs, you know how hard it can be to get your child set up in a school. You have IEP meetings, struggles with teachers, parents, and school staff all trying to find the best way to meet the child's needs and still get everyone through day. If you have child with autism, you know that change is not a good thing.

A local family is dealing with both of these factors. For their privacy, we are not making their identity public, but I do know them personally, and I know that Mom and Dad only want what's best for their son. Dad was laid off in December. The Boy is ten, and because of his particular issues, has never been able to attend one complete school year at one school.

The Boy is now at a school where things are working for him. Dad does have a few job prospects, but they do not seem to be in a hurry to give him an answer one way or another. As of right now, the family will have to move out-of-state to live with family until Dad can find a job. This will mean that The Boy will have to leave his school and start a new one with just two months left in the school year.

Our local support group has set up a fundraiser to raise the money to get them through the end of the school year. (Prayers that Dad would find a job before then would be fabulous, too.) The family did not ask for money, but they are aware of the fundraiser. (I also asked permission before writing this blog post.) All money goes directly to them and does not even pass through the hands (or accounts) of the organizers (although I know them personally, too, and they're completely trustworthy).

Any and all help is greatly appreciated. This is a family that doesn't hesitate to help others, as I can personally attest. If you would like to donate, the link is below. You can also help by passing this on.

Fundraiser name: We Love The Boy
Why: To help The Boy complete a full year at his school for the first time in his life.
Uses: Living expenses to help The Boy's family stay where they are so The Boy can stay at his current school, with the services that are working well for him.

Monday, October 7, 2013

Giveaway: YumEarth Organic & Natural Halloween Candy

YumearthHalloween

YUMEARTH ORGANIC & NATURAL HALLOWEEN CANDY IS A TREAT, NOT A TRICK!
YumEarth’s great taste comes from real fruit juice and natural ingredients, instead of scary artificial colors and flavors.

YumEarth, the #1 organic candy in the US, makes Halloween treats kids love and parents approve. Growing numbers of families are looking for food choices that taste good and are good for you, too. YumEarth has pioneered a successful combination of natural ingredients and unique flavors that taste BETTER than conventional candy made with scary artificial colors and dyes. This Halloween don’t trick kids, instead treat them to YumEarth Organics Gummy Bears, YumEarth Organics Lollipops, YumEarth Naturals Sour Beans and new YumEarth Organics Fruit Snacks.

Wednesday, August 21, 2013

Review: Understanding Child Brain Development DVD

 photo 182266_202676429747109_4948289_n_zpsa1ed36ca.jpg
I'm a reviewer for The Old Schoolhouse Review Crew over at my other blog, Living, Learning, and Loving Life, and I was thrilled to review a DVD this week that was full of fascinating information. You can read my full review here.

*I don't get a commission from the purchase of the DVD, but I did receive the DVD free for the purpose of reviewing it.

Sunday, February 3, 2013

YumEarth Candy Giveaway

YumEarthButton
YumEarth Candy is free of all allergens, preservatives, and artificial colors so they are safe for our kiddos. All products are Feingold-friendly. You can see a list of their ingredients here. (I'm not an affiliate and I'm not going to start posting a lot of weird stuff on here. I just stumbled across this giveaway and thought you guys might appreciate it.)~ Amanda


This Contest is brought to you by Taking Time for Mommy, Midwestern Moms, and YumEarth Organic Sweets

This Valentine’s Day say “I love you” and “I care” with YumEarth Organics sweets. YumEarth all-natural and organic candy gives families the opportunity to give the gift of delicious treats made with real fruit juice, no artificial color or flavors, no high-fructose corn syrup and none of the common allergens, like gluten, soy and nuts.

Let’s make a commitment this Valentine’s Day to write about and give out better-for-you Valentine’s Day candy, like YumEarth.

Tuesday, April 10, 2012

Win What I Wish I'd Known About Raising a Child with Autism in the Autism Awareness Hop


April is Autism Awareness Month. This hop will feature books about autism or posts about autism along with giveaways on each blog. I'm giving away a copy of What I Wish I'd Known About Raising a Child with Autism by Bobbi Sheahan and Kathy DeOrnellas, Ph.D. You'll have your choice of a Kindle ebook (You don't have to have a Kindle to read it. There are several free Kindle apps.) or a paperback. You get a choice because I'm not giving up my copy so I'll be ordering one for you. If you know how picky I am about the books I keep, that should tell you how awesome this book is. You can read my review here.

Book Review: What I Wish I'd Known About Raising a Child with Autism by Bobbi Sheahan and Kathy DeOrnellas

Amazon summary
Bobbi Sheahan, mother of a child with autism, and psychologist Kathy DeOrnellas, Ph.D., did not write this book to lecture you on how to parent your child. Instead, they offer themselves as your scouts in the field, who have valuable information to share—from the moment you realize your kid is different ("My, what a quiet baby I have!"), to the self-righteous moms on the playground, to holding your marriage together in the realm of routines.

Wednesday, November 9, 2011

Explaining Personal Space to Your ASD Child

As with so many things related to ASD, there is a wide range of behavior when it comes to personal space and touching. Some kids don't want to be touched and they certainly don't want to snuggle. Others (like my son) have no understanding of personal space or inappropriate touching. He's still a snuggler at the age of ten, though, so it's not all bad. :-) We just have to teach him what is appropriate and what isn't.

When someone doesn't understand personal boundaries, they often annoy those around them by standing too close, touching too much or in the wrong places, or hugging inappropriately. I remember having J in Sunday School class/nursery at church when he was 18 months-2 years (long before I had even heard of Asperger's). I was in there with him during that time as a teacher, along with several other parents. (We had a 2-1 ratio and it was a big class.) J would hug the other kids, but then not let go and they would end up both falling over. Or the other child would get tired of the game and want loose. I would have to go pry J off the other child. Most of the other teachers were also parents of children in the class, and they just thought it was cute and sweet. No one was ever hurt.  I used to say, "It's a hug for about five seconds. After that, it's assault." (Actually, I still say that.) Well, what's funny at the age of two isn't so funny at the age of 15 or 20. So I'm always trying to teach him what is appropriate behavior so we don't end up with a serious problem later.

Friday, October 14, 2011

What About the Boy? A Father's Pledge to His Disabled Son Book Giveaway

I'm giving away a copy of What About the Boy?: A Father's Pledge to His Disabled Son by Stephen Gallup on my other blog. This is a great story that "chronicles a family's rejection of hopelessness and their pursuit of a normal life."

Tuesday, September 20, 2011

Because Every Day is an Adventure...

Yesterday J had his psychological evaluation with the school psychologist to see if he qualifies for an IEP. Her office is an hour away on the other side of Atlanta, so we had to get up early (for us) in order to get Little Brother to my friend's house before we left. The testing was to take about two hours and I knew that LB and I would both be much happier if he were occupied elsewhere. Preferably somewhere with toys. Another homeschool mom volunteered to watch him for me, so I left him on his own for the first time. I've left both boys with someone (other than their dad or brother) once or twice, but never LB alone. He was not enthusiastic about going, and J didn't really help. Being a worrier, he kept bringing up things that could go wrong. Fortunately, he didn't start that until we pulled into the driveway, so I was able to get LB out of the car before he got upset and panicky. J stayed in the car while I took LB in and after a few minutes, I left, with no tears in sight (from either of us.)

In the five minutes between my friend's house and the interstate, J managed to spot a spider. Have I mentioned that he's terrified of spiders and bugs? So, someone screaming while you're driving down the road is always nice. He refused to kill the spider, but by the time he told me that, we were already on the interstate. And it was on his window, but not in a spot where I could just roll down the window and let it out. I'm still not real clear on exactly where it was, but I think it was on that little "wing window" area at the back part of the window. Except these days, those windows don't open. So he spent the entire hour ride staring at the spider to make sure it didn't attack instead of playing his DS.

When we were about ten minutes away from the office, my phone rang. It was a friend who has recently realized that her son is autistic. She was having a really rough day and although I did listen for a few minutes, I felt bad that I didn't have more time to talk to her. We all need someone to listen on those days when we're just totally overwhelmed with everything.

Just as we pulled onto the street where the office is, J yelled, "Roll down the window! Roll down the window!" So, I'm on the phone, driving, watching the GPS, and trying to operate the power window. (I only have two hands. I think moms should be granted an extra arm and hand each time we give birth.) That was interesting, but the spider was gone and I didn't run into anything.

While J was having his evaluation, I got to fill out paperwork. I filled out five different questionnaires. Several of which were the same as those I filled out for Brain Balance. (Just something to keep in mind when a doctor tells you that the Brain Balance centers don't do proper evaluations. I'm just sayin'.) It took me over an hour to fill all that out. Fun stuff.

We won't get a full report for a couple weeks, but Dr. Wells did talk to me for a few minutes before we left. She said J's vocabulary and language skills are off the charts and that he is exceptionally bright. Yes, thank you. We knew that already, but it never hurts to hear it from someone else.

I can't even remember the last time we ate at a fast food restaurant, but we were hungry, an hour from home, and I wanted to give him a little treat for putting up with the testing. He wanted to go to Chick-Fil-A, so I punched Chick-Fil-A into the GPS. Turns out we were right around the corner from one. "40 seconds" away, to be exact. That was pretty entertaining. We've never been 40 seconds away from anything before. Even at less than a minute, I would have expected it to read, "1 minute," not 40 seconds. I even took a picture and posted it on Facebook.



I was so focused on the whole GPS thing that I didn't remember why we haven't eaten at Chick-Fil-A in a while. They don't have anything that doesn't have batter. Batter has eggs. I didn't even think about it until we had already ordered. They were already making our order, and it's not as if it's a life-or-death thing, so I just let him eat the chicken strips. His dad had fixed him a salad the previous evening with bleu cheese dressing anyway, so it's not as if he didn't already have eggs in his system.

On a side note, I decided this morning to let him go back to eating eggs. It's been several months, and we've done really well, with only three or four infractions (and two of those were this week), but we haven't seen any changes. I know not all sensitivities manifest in physical symptoms, but I would rather he eat eggs and hashbrowns or homemade pancakes for breakfast than the crappy cereal his dad has started buying - pretty much because it's so hard to find something decent J can eat for breakfast (that he will eat) without eggs.

So we're driving down the interstate eating waffle fries when J screams again. His spider's twin was on my little storage console thing between my front seats. I grabbed a napkin and squished it. (Sorry, spider lovers, but I was driving 70 miles an hour with a phobic kid in the car. I had to take drastic action.) I put the napkin in my trash bag between the seats. Everything is all happy and greasy until a few minutes before we get off the interstate. "A spider just went into your console thingy!" Oh, for pete's sake. Either we have an infestation or we have a zombie spider.

When we got to our exit, I pulled into a gas station parking lot and pulled everything out of the console. Killed the spider. Again. Or whatever. Probably should have done the "save the spider" thing, but honestly, I was a little freaked out at that point. Threw the napkin and the squished spider into the gas station trash can. So the zombie spider is someone else's problem now.

I put everything back into the console and we went to pick up LB. He was happily playing with Play-Doh and hadn't cried at all. Glad he missed us. I told him to thank his little friend for sharing her toys. He did, and the first thing he said to J when he got in the car was, "R shared." LOL Then he said, "My seat smells like chicken nuggets." We had thrown the trash away when we stopped, and I had the windows down, but I guess you can't slip anything by that one. Fortunately he didn't pursue it.

We then went to the park for our homeschool group's regular park day. Where most of us sat around talking about our spectrum children. I did get to hear two moms who are new to the group tell me that their sons, who had come to park day for the first time last week, had specifically mentioned at home that J was nice and had made them feel welcome. Hello, warm fuzzies. :-) He's pretty good with some social stuff. He just doesn't understand when someone is through listening or ready to move on, and he just keeps on with his own thing.

Then we met another mom who isn't part of our group (her son is in regular public school), but has an autistic son. So we talked for a while, and I got some useful information and a new Facebook friend.

So, I was thinking that it really sucks that there are so many of us. And frankly, I'm not thrilled with being one of "us". But no one asked me before I was volunteered for this club. So we'll share information and stories and shoulders because none of us can get through it alone.

Monday, September 19, 2011

Book Giveaway - Seeing Ezra: A Mother's Story of Autism, Unconditional Love, and the Meaning of Normal

I run a weekly book giveaway drawing on my other blog. This week's book is Seeing Ezra by Kerry Cohen.  Hop over and enter. It's very easy. Just leave a comment. (On the other blog, please, not here.) It's a great book and I'd love for one of you to win it. Just go here to enter.

Tomorrow, I'll post about our adventures in IEP land, including a spider hunt.

Seeing Ezra: A Mother's Story of Autism, Unconditional Love, and the Meaning of Normal

Thursday, September 8, 2011

Seeing Ezra by Kerry Cohen - Book Review

I usually do my book reviews on my personal blog, but I was actually asked to review this book on this blog. If I didn't think it was worth sharing with you, I wouldn't, but I do, so I am.

Amazon summary
Seeing Ezra is the soulful, beautifully written memoir of a mother’s fierce love for her autistic son, and a poignant examination of what it means to be “normal.” When Kerry Cohen’s son Ezra turns one, a babysitter suggests he may be “different,” setting her family on a path in which autism dominates their world. As he becomes a toddler and they navigate the often rigid and prescriptive world of therapy, Cohen is unsettled by the evaluations they undergo: At home, Ezra is playfully expressive, sharing profound, touching moments of connection and intimacy with his mother and other family members, but in therapy he is pathologized, prodded to behave in ways that undermine his unique expression of autism.


It soon becomes clear that more is at stake than just Ezra’s well-being; Cohen and her marriage are suffering as well. Ezra’s differentness, and the strain of pursuing varied therapies, takes a toll on the family—Cohen’s husband grows depressed and she pursues an affair—all as she tries to help others recognize and embrace Ezra’s uniqueness rather than force him to behave outside his comfort level. It isn’t until they abandon the expected, prescriptive notions about love, marriage, and individuality that they are able to come back together as two parents who fiercely love their little boy.

Powerful and eye-opening, Seeing Ezra is an inspirational chronicle of a mother’s struggle to protect her son from a system that seeks to compartmentalize and “fix” him, and of her journey toward accepting and valuing him for who he is—just as he is.
Seeing Ezra: A Mother's Story of Autism, Unconditional Love, and the Meaning of Normal
My review
I'm learning that the more personal a book is to me, the harder it is to review it. Seems like it should make it easier, but it doesn't. I don't totally agree with Ms. Cohen on some things, but that doesn't make the book any less impactful. I finished this book four days ago, but I couldn't find the words to write a review.

At first, I found it hard to relate to her because when she first started seeking help for her son, she didn't want anyone to think badly of him, so she didn't tell the doctors and therapists everything they needed to know to properly evaluate him. I'm a straight-up kind of gal, and I figure that even if the "experts" don't have all the answers, they can't help us if they don't know what's going on. Eventually, though, she moved past that. She came to a point at which she could tell the doctors everything, but she didn't hesitate to get up and walk out if their needs weren't being met. That's my kind of mom.

The question Ms. Cohen keeps repeating in her book is one that I think every parent of a special-needs child faces. It doesn't matter what your opinion is on alternative therapies, or curing autism. The most important thing is: Where is the line between helping him with the areas where the world feels hard for him and negating who he is?

There is some foul language in this book, but don't let that stop you. It always helps me to read about how other moms are dealing with challenges. Not only do I usually learn something, it helps me to not feel so alone. (No matter how much support we have, I think sometimes we all feel like no one else knows what it's like.)

About this book
Title: Seeing Ezra: A Mother's Story of Autism, Unconditional Love, and the Meaning of Normal
Author: Kerry Cohen
Publisher: Seal Press
Release date: August 30, 2011
Pages: 288
Where I got this book: I received this book for free from the publisher in exchange for an honest review.

Thursday, September 1, 2011

What About the Boy? by Stephen Gallup - Book Review

I write book reviews for my personal blog, and I recently received a wonderful book written by the father of autistic child. (Actually, he is no longer a "child", but during the time detailed in the book, he is.) I wanted to share it with you here. If you're reading this blog, there's a good chance you've already decided that there may be more solutions out there. This book is about a family who made extreme sacrifices to get their son the treatment he needed.

From the back cover
Nobody knew what hurt little Joseph. Perhaps some toxin had invaded his mother's body before his birth. Perhaps it was the difficult birth itself. Or maybe the origin of his disabilities was genetic. Whatever the cause, something had gone terribly wrong — but no one was offering solutions or reasonable guidance.

He cried most of the time, and thrashed about as if in great pain. He wasn't learning how to crawl, talk, or interact normally. His parents sought medical help and were told at first not to worry so much. Later, the professionals recommended counseling to help the parents accept reality. Nothing could help their son, and the quality of their own lives was at risk.

Refusal to accept that advice launched an improbable journey that changed their lives forever.

What About the Boy? A Father's Pledge to His Disabled Son chronicles a family's rejection of hopelessness and their pursuit of a normal life.

What About the Boy?: A Father's Pledge to His Disabled Son

My review
I expected this book to make me cry. I did not expect it to make me mad. As I read about the Gallup's struggle to find answers for their son, I was so disgusted by the mainstream medical world's refusal to, at first, acknowledge anything was wrong, then later, to acknowledge that someone somewhere might know something they didn't.
 
This is a book about being your child's advocate. It's about pushing past all the "experts" who are basically telling you, "We don't have the answers, so you're not allowed to have questions." It's about parents who were so desperate to help their son that they humbled themselves and asked for help from people they didn't even know. It is not about Super-Parents. Steve is very transparent about just how human they are.

One thing that Steve and I agree on is that every child should be allowed to reach his full potential. He mentions one father who told him that if he had to choose between his child being low-functioning but full of the understanding that she was loved completely, or a “normal” child who didn’t feel loved, he’d choose the low-functioning. Steve (and I) wondered why the two were mutually exclusive. We’re not talking about making a child feel like he is less of a person or that he is damaged goods. We’re just talking about making the effort to do what we can to help our children function at as high a level as they are capable of.

I found it interesting that back in 1989, the program that the Gallups used to help Joseph reach his full potential used some of the same methods I’ve seen in “alternative” programs in use today. Alternative programs that are working. As Steve says, “We’d seen enough to know that the answer for one kid may be unrelated to what works for another, that very seldom is any answer complete, and that there’s no escape from guesswork. The only feature the various success stories shared was a willingness of each family to reject experts who would not help.”
 
I did cry three times while reading the book. The first time was reading about all the amazing volunteers who had stepped up to help with Joseph's program, almost all of whom were complete strangers at the time. The second was when an Institutes staff member told the Gallups that the whole staff went out for ice cream to celebrate when they got the call telling them that Joseph was walking. At that meeting, the staff member also told them, "Joseph deserves to be told how great he is." (I'm quite sure Joseph was getting message loud and clear from his parents.) I also cried at the end of the book, but you'll have to read it to see why.

This is the story of an amazing family. Parents who were willing to make great sacrifices for their son, and a son who was strong enough to do what the “experts” said he couldn’t do. I won’t say it’s an easy read because there is some emotion involved, but it’s well-paced and well-written. I highly recommend this book to everyone, especially parents.

About this book
Title: What About the Boy?: A Father's Pledge to His Disabled Son
Author:
Stephen Gallup
Publisher: Lestrygonian Books
Release date: Sept 1, 2011
Pages: 376
Where I got the book: I got this book
for free from the author in exchange for a review

Sunday, June 26, 2011

Different, Not Wrong

I finished Be Different: Adventures of a Free-Range Aspergian almost a month ago, but I’ve been thinking about it all this time, trying to decide what to write. Robison’s latest book is as well-written and entertaining as his first book, Look Me In the Eye: My Life with Asperger's. I think I’ve hesitated to write about Be Different because I see so much of myself in the anecdotes. I see more of my son, which makes sense, as he’s been diagnosed with Asperger’s, but there’s a lot of me in there, too. Even having acknowledged several months ago that I have some Aspie tendencies, it’s still a little weird to see that many similarities. I’m what Robison calls a “Proto-Aspergian”, someone with a few Aspie traits, but isn’t completely Aspergian (Robison’s name for Aspies). Neurotypicals are “Nypicals”.
I don’t usually read other reviews before I write a review (and this isn’t really a review), but as I said before, I was at a loss for what to say. Until I saw a reviewer who had written that he didn’t finish the book because it was written just for Aspergians and their families, and that the advice seemed simplistic.
Be Different: Adventures of a Free-Range Aspergian with Practical Advice for Aspergians, Misfits, Families & Teachers
Honestly, I think everyone should read this book. I guess it’s pretty, well, simplistic, but I think if people would take the time to understand a little about others who aren’t like them, differences wouldn’t seem so scary or bad. If you’re a teacher or in any kind of profession where you’re around a lot of kids, reading this book will help you understand that not all those “bad” kids are bad. (Kids rarely are, but that’s for another post.) For those with friends or family members with Asperger’s, it really does help to read things written by an Aspergian. For Aspie kids, while they may realize that there is something different about them, they don’t really understand all the ways in which they think differently than Nypicals. How can they? It’s all they’ve ever known. That’s just the way things are for them. So hearing it from someone who is able to articulate it is helpful.
On a side note, Robison writes a lot about music, and I’m not a musician, but I think both his books would be enjoyed by musicians. (He used to design exploding guitars for KISS, in case you didn’t know.)
As for the reviewer’s claim that the book’s advice is simplistic, all I can say is that he obviously isn’t close to anyone with Asperger’s. If he were, he would know that, in some situations, Aspies really do need basic advice that sounds intuitive to Nypicals. The example the review gives is, “Manners are important even if they don't make sense. Read Emily Post.” That may sound ridiculous to many, but it makes perfect sense to me in relation to myself and my son. I think if you’re a Nypical reading the book, you can learn something if you keep in mind that the book was written mainly for other Aspergians.
You don’t have to read Look Me In the Eye first to understand Be Different, but I think it adds a perspective to the book that you wouldn’t have otherwise had. And reading in Be Different about John Elder teasing his younger brother wouldn’t be quite as funny without knowing all the tricks John Elder played on him when they were young… and knowing that even after all this time, he’s still falling for it.

Saturday, April 16, 2011

Interesting Conversation

We had an interesting conversation on the way home from the park. I don't remember every word, but I remember most of it, so we'll just go with the flow.

J (out of nowhere): How does someone get AIDS?
Me: There are several ways. Sometimes they get it from contaminated blood. Like giving shots at the doctor (there was more here; he understood I meant using the same needle for more than one patient, not getting shots in general) or donating or receiving donated blood. (which started a side discussion on blood types)
J: So they don't wash the needles in between people?
Me: No, they just throw them away and get a new one.
J: So how else can someone get AIDS?
Me: Along the same lines, people who use illegal drugs sometimes use a needle and syringe to inject the drugs into their blood. When you're using drugs like that, using a clean needle is the last thing you care about. Several people will sometimes share needles and they spread diseases like that.
J: So they do two bad things. They're using drugs and using contaminated needles.
Me: Yep.
J: So how else does someone get AIDS?
Me: By having sex with someone who has it.
J, after a minute of silence; I assume he was trying to think of what sex is: Like what a man and a woman do to make a baby?
Me: Yes.
J: So how does somebody catch cancer?
Me, happy he didn't pursue the sex thing: You don't catch cancer. It's not contagious. It's kind of like cells in your body multiplying that shouldn't be multiplying and they attack your body and your body can't fight back.
J: Like where the clones on Star Wars multiply and attack?
Me: Something like that.
He asked something else about cancer and I explained that environmental problems often cause or make cancer worse, like the chemicals in our food, the chemical cleaners we have in our houses and the pesticides on food and in the air.
J: So can you catch Asperger's and dyslexia or whatever that other thing is?
I think he was trying to say dyspraxia, but the answer is the same for either one, so I just answered his question.
Me: You're born with it. Just like with cancer, the things around us and the food we eat can make it worse, but those things don't cause it.
J, without missing a beat: Okay, so I know a decade is ten years and a century is a hundred years, but how long is a millennium?

Nope, that last question had nothing to do with AIDS, cancer, or Asperger's. Welcome to my world. LOL

Friday, March 25, 2011

Helping Our Kids with Social Skills

I have a bit of a book addiction and in order to keep from using money that could be used for other things, like food, for example, I use the library. A lot. I also get books for free from publishers in exchange for posting reviews. One of my books was A Parenting Guide for Families of Children with Disabilities: Developing Social Skills Towards Independent Living. I've already written the required review, but I wanted to share this book with you. It was written with a wide range of physical and developmental disabilities in mind, but really, except for one or two points, it could have been written specifically for kids and young adults with Asperger's. It's vague enough that you can easily apply the concepts to your family, but detailed enough that you actually know what you're trying to do.

It has four different sections, each with a worksheet-type page at the end on which to write your family's goals. The first section is First Impressions, dealing with personal hygiene. The  second is Behaviors, like facial expression and personal space. The third is Verbal Communication, including listening (if your Aspie is anything like mine, the trick is getting him to stop talking about Pokemon or dinosaurs long enough to listen to someone else) and phone skills. The fourth is Daily Living and Community Skills, like shopping, banking, and problem solving.

As with pretty much any book, you take what you need from it and leave the rest. This book will be a big help for me and I hope it helps someone else out, too.

Monday, March 7, 2011

Round 2: Week 2

No progress to report this week, but I did learn a few things.

Book reports are evil. At least they are for detail-oriented, literal children. He had a lot of trouble keeping his "summary" cut down to less than the length of the book. "Just tell me the important things," didn't help. Everything is important. And it's hard to "get" the theme or message of a story when you can't see past the story. He reads because he enjoys the story. Unless a message or moral stated clearly, he just doesn't pick up on it. Fortunately, he only had to do one book report this year and now it's done.

Asperger's is making its way around the airwaves (or whatever digital cable travels on these days). Parenthood on NBC has an ongoing storyline about an 8-year-old with AS, one of the finalists on American Idol has AS, and, although it's autism, not specifically AS that's featured, there is a UK show, Young, Autistic & Stagestruck that you can find online here in the US.

Despite that, there are still many people who have never heard of Asperger's Syndrome. I was talking to my new next-door neighbor last week and she hadn't heard of it. I missed Asperger's Awareness Day in February, but Autism Awareness Day is April 2. My hope is that more people will also learn about Asperger's on that day.

Wednesday, March 2, 2011

Does Your Child Know He Has AS?

Did you watch Parenthood last night? I recorded it and watched it this morning. Apparently I have a new show to keep up with. I want to see where they go with the story.

I couldn't really understand why Kristina cried when they were explaining Asperger's to Max. Of course, I also don't understand why they felt the need to hide it from him for a year, either. AS is challenging and frustrating and I was a little stunned when we first heard that J has AS. In fact, I had a small panic attack right before we got the results of the evaluation. But I didn't cry. And I cry about everything. In fact, I cried when Max had his meltdown in the park on the show. I felt so bad for him. And you know when that happens in real life, everyone in the park is thinking, "What a brat." Makes you want to stand there and hand out pamphlets about AS.

Anyway...AS does present some challenges, but I don't think it's something to grieve about. There are so many more debilitating issues that families have to deal with that really, in the scheme of things, AS isn't that bad. Really, it isn't that horrible taken on it's own, either. On the show, Adam was resistant to sharing any positive aspects of Asperger's with Max - mainly because Adam didn't believe there were any positive aspects. He and Kristina were both so mired in the challenges that they couldn't see anything else.

I won't pretend living with an AS child is easy. I've been pretty open about that on here and if you have an AS child, you already know how it can be. But they're also sweet, smart, funny kids.

Apparently the writers have done a lot research, because they even "got" that it's usually the dads who have more trouble accepting the diagnosis. I wanted to reach through the TV, grab Adam, and say, "Stop being so negative!"

I did like the way they eventually sat down and talked to him. I've never hidden from J that he has AS. I even talked to him about it when I started thinking he might have it. He's just so smart that it never occurred to me to not talk to him about it. It helps him understand why he does some of the things he does instead of being frustrated with himself because he can't stop. It's part of who he is, so I don't see how hiding that is beneficial.

And now I have to go back and watch the previous episodes because I'm curious how they had him working with a behavioral therapist for a year without giving him some kind of explanation.

Does your AS child know he (or she) has AS? Did you tell him as soon as you found out or did you wait? What made you decide to either tell him or keep it from him?
Related Posts Plugin for WordPress, Blogger...